Pazienti affetti da malattie rare della pelle e COVID-19
ERN-Skin supporta pienamente i pazienti e le loro famiglie durante questo periodo di pandemia di COVID-19 e fornisce le seguenti raccomandazioni e informazioni ai pazienti affetti da malattie rare della pelle
Constipation management for children and adults with epidermolysis bullosa (EB). An expert working group consensus / Published 2020
Psychosocial Care
Psychosocial recommendations for the care of children and adults with epidermolysis bullosa and their family: evidence based guidelines | Published 2019 | Funded by DEBRA Norway
Wound Care
Best Practice Guidelines: Skin and Wound Care in Epidermolysis Bullosa / Published 2017